Last night I started watching youtube videos of people getting their drainage tubes removed. That was a really bad idea. Really. bad. idea. I went in on Monday (yesterday) because one of the tubes had part of the inside come lose, but the nurse decided to leave it alone since it was still working and should be removed soon. I was hoping she would just remove them that day, but she said I needed to have 2 days in a row under 30 ccs and I had only had one. So today (Tuesday), I had one drain ready to be removed because it had been under the limit for 2 days, but the other drain was a day behind and had only been under 30 ccs for one day. The nurse said I could come in and have them removed at different times, but since it was so close, I decided I would wait and have them both removed tomorrow. I was afraid that if I went in and had one tube removed today, and it hurt, then I would spend all day worrying and dreading going back in to have the other removed. So it was better to do them both at the same time. The nurse assured me that it doesn’t hurt, even said she had four of them removed from her own body before. But sometimes nurses lie about stuff like that so you don’t worry, so I didn’t feel that I could trust her. So I turned to the internet instead, which is always a bad idea. While most sources indicate it is no big deal, I did find a few stories about how the pain was so bad they almost passed out. And then the videos….oh my goodness. The videos were made by people to show that it is no big deal to get the drainage tubes removed, but when I watched the first video, I wanted to pass out from the creepies. I hate the idea of things in my body and watching them pull all this tubing out of someone’s body was just too much. Yuck.
I called today to schedule a time to go in tomorrow and get the drains removed, but then was told that no one would be available to do it tomorrow and I would have to wait until Thursday. What’s one more day, right? So Thursday at 10:00 it is. One of my friends is coming to drive me so I can take 2 percocets, just in case it does end up hurting. The percocets have not ended up doing much for me. They don’t seem to take away the pain or make me as tired I remembered from taking them a few years ago. But I haven’t taken two at once yet, so maybe that will work.
Today I left the house to get a haircut. Mostly, I wanted my hair washed really good since I’m not showering regularly right now, but decided I might as well get a trim while I was there. It was enough to make me tired and want to lay down when I got home. Any activity that gets my blood flowing, such as walking, tends to bring on a little bit of pain. Only the pain is not as much an ouch kind of pain as it is just tingly uncomfortable pain. And it’s starting to get itchy, especially near where the tubes are inserted. I’ve been taking an allergy pill each evening (which helps me sleep more than the percocet does), but it doesn’t seem to help the itching. When the tubes are out I should feel more comfortable using lotions and things, so maybe that will help.
Today I also signed up for a program at the YMCA called Livestrong at the YMCA. It’s a 12 week program for cancer survivors. You don’t even have to be a member. It will start on May 3rd and I’m pretty excited about it. It sounds like it will be a small group of people working with a trainer who has specialized training in working with cancer survivors around physical fitness. I think it will help make sure I do the right excersises to build up arm strength and overall better fitness. Sort of like a support group, but the goal will be physical fitness.
And today I left a message with someone about setting up a time to do a lymphatic drainage massage. I have some swelling in my lymph node that was biopsied, so I thought that might help. I’m hoping to be able to get that set up soon.